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Recommended Reading:
Daily Coping |
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Minding the Body, Mending the Mind, by Joan Borysenko
This book gives
detailed instruction about stress reduction techniques and how to learn
good habits such as healthy breathing, living mindfully, and meditation.
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You Don’t LOOK Sick! Living Well with Invisible Chronic Illness,
by Joy H. Selak and Steven S. Overman, MD, MPH.
This book is written
by a woman with fibromyalgia, myofascial pain, interstitial cystitis and
undifferentiated connective tissue disease. She also has a super
primary care physician and co-author. This book may help others
understand what it’s like to deal with invisible chronic illness.
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I’d Rather Be Working, by Gayle Backstrom
This is a book about empowerment written by a fibromyalgia patient who know
what it is all about. It is a comprehensive and useful guide to dealing with
chronic illness, employment and financial independence.
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"Hypnotize
Yourself Out of Pain Now!", by Bruce Eimer PhD, ABPP
Chronic pain
can lead you down the path of helplessness. The daily grind can wear
and tear at the edges of your soul. Self-hypnosis has the ability to
modify and harmonize neuromodulators and other biochemicals that
influence the sensations that contribute to chronic pain. This book is
written by a doctor who understands both fibromyalgia and myofascial
pain. It will empower chronic pain patients who have not found pain
control with other methods, and will give them a new measure of
control over pain. It's also an important tool for patients who desire
a greater return of function and less reliance on medication and other
therapies.
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Stress
Relief Beyond Belief, by John F. Iams, MA, PT
Do you get "stressed
out"? John Iams has discovered a way to interrupt the stress
cycle. His booklet can show you an easy (and free) way for you and
those around you to help break up the physiological "fight or
flight" response. My local support groups have tried his method
and they found it very helpful. Contact John
Iams for more information. |
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Healing
Through Joy, by Jacob Teitelbaum, MD
This is an incredible book. No
matter what your religion or belief system, it can mesh with your
spirituality, lift your heart, give you hope, and lighten the burdens of
the world. I highly recommend it. This book can be ordered
through Dr.
Teitelbaum's website. |
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Coping
With Anxiety, by Edmund Bourne, PhD and Lorna
Garano
This book is an informative,
well-written, easy-to-read guide for coping with anxiety. We live in a
world of stress, and that world can seem overwhelming at times. This guide can be helpful for anyone struggling to cope. |
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The
Seven Sins of Memory: How the Mind
Forgets and Remembers,
by Daniel L. Schachte
In spite of the use
of words like "sins" to describe memory dysfunctions, this book
has a lot of good information. It helps to understand that
the common memory deficits — transience, absent-mindedness, blocking,
misattribution, suggestibility, bias, and persistence — are different,
and each of them can be remedied. |
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The
Art of Being a Patient: Taming Medicine
(An Insider’s Guide: Becoming a
Proactive
Partner and Self-Advocate of Your Own Health
by Understanding),
by Phillip Caravella
This book is an easy to understand
guide to help you manage your own medical care. |
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The
Johns Hopkins Consumer Guide to Medical
Tests: What You Can Expect, How
You Should
Prepare, What Your Results Mean, (ed) Simeon Margolis
This comprehensive coverage
(including the what, where, why and how of the tests and questions such as
insurance coverage and possible meaning of results) of over 150 common
medical tests may be very helpful for people who undergo frequent medical
tests or deal with patients or clients who deal with testing. It would be
useful as a guide for those who prepare handouts. |
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Whose
Life is it Anyway: When to Stop Taking
Care of Their Feelings and Start
Taking Care of
Your Own, by Nina W. Brown, ED.D, LPC, NCC
It may be true that the children of functional
families make up the smallest support group in the world.
This is a book written for the rest of us.
Do you find your life eaten up by tasks that you feel obliged to
do, but don’t want? Do you
ever feel manipulated by others, or feel guilty when you try to have your
own needs filled? This book
explains why this may be happening, and what you need to do to start
living life with enlightened self-interest. |
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Living Well with a Hidden Disability,
by Stacy Taylor with Robert
Epstein
This book is a treasure which will help those of
us with hidden disabilities cope with a world that often refuses to
acknowledge or validate our conditions. There are sections emotional
issues, physical issues, health care provider issues, love and sex,
parenting, the workplace, and dealing with the public. The workbook
sections are also very helpful.
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Why
Children Misbehave and What to Do About
It (The Illustrated Parent's
Guide), by Christine Adams, Ernest Druge
Although this is not
specifically for parents or children with fibromyalgia, it can be a big
help for parents who have to deal with children who misbehave at the same
time dealing with chronic pain.
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Thueson's
Guide to Over-the-Counter Drugs: A
Symptom-By-Symptom Handbook of the
Best
Nonprescription Drugs, by David O. Thueson
This is an
easy to use guide for over-the-counter drugs that is very user friendly
for people who are looking for alternatives to help cope with specific
symptoms.
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Earning
Your Own Respect: A Handbook of
Personal Responsibility, by Thom Rutledge
This book may alert you to many things that were happening without you
being aware of them. This is a guide to help you banish negativity
from your life.
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The
Healing Sorrow Workbook: Rituals for
Transforming Grief and Loss, by
Peg Elliott Mayo and David Feinstein
This book gives many
alternatives to help you work through the sorrow in your life.
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Stop
Controlling Me!: What to Do When
Someone You Love Has Too Much Power
Over
You, by Richard J. Stenack
If you have someone in your
life who tries to manipulate and control you, this book will give
you what you need to take back your own control over life situations .
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Serenity
to Go: Calming Techniques for Your
Hectic Life, by Mina Hamilton
This is a fun book that can introduce you to practical mind work
techniques.
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The
Woman's Guide to Total Self-Esteem: The
Eight Secrets You Need to Know, by Stephanie Dillon and Christina
Benson
Many people with
chronic illnesses lack self-esteem. This lack can add to emotional
imbalance. Get your self-esteem back, learn how to assert yourself,
and learn how to advocate for yourself in a positive way.
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The Fibromyalgia Supporter,
by Mark J. Pellegrino, MD
Mark
Pellegrino is a wonderful and witty doctor. I just wish he would
learn the difference between fibromyalgia and myofascial pain.
That notwithstanding, this is an excellent book for supporters and
companions of people with fibromyalgia.
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Disrupted:
Finding God in Illness and Loss, by Virgil M. Fry
This book is a collection of prayers, essays and
stories that can be very helpful for those who struggle with the concept
of a loving God while dealing with pain and loss, "trying to make sense of
the chaos". I have found it very helpful. Suitable for Christian and
non-Christian readers.
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Disappointment
with God, by Philip Yancy
This book explores the questions that
many of us with chronic pain may ask. Is God Unfair? Is God Silent?
Is God
hidden? This book is written from a Christian viewpoint but is suitable
for the non-Christian as well.
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Where
is God When It Hurts?, by Philip Yancy
This book holds stories of those who have faced
pain and suffering, and explores what we can learn from pain and what
possibilities open up with what we have learned. This book is written from
a Christian viewpoint but is suitable for the non-Christian as well.
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Embrace Tiger, Return to Mountain: Spiritual Conflict Management,
by Gary
Simmons (Reader)
Of all the audio tapes I reviewed for the 2nd edition of the
Survival Manual, I thought this one was one of the best. It blends
Judeo-Christian philosophy with the Tao and does it well. The author and
narrator is both a Unity minister and a martial arts instructor. It is a
guide for dealing with conflict and fear in the journey of life. I will
listen to this tape many times.
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Poetry of Pain,
by Linda Martinson, Simply Books, Lynnwood, WA, 1996.
People
with FMS and CMP may resonate with these poems. When you feel like "nobody
understands", read them. Somebody does.
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Healing Ancient Wounds The Renegade’s
Wisdom by John F. Barnes, PT,
Rehabilitation Services, Inc., T/A MFR Treatment Centers & Seminars,
Paoli, PA, 2000.
This
is a special book about myofascial release and the myofascial connection.
It contains excerpts from myofascial therapists and patients, as well as
John Barnes’ well-written, insightful comments. If you need to get in
touch with your myofascia, and we all do, this is an important book for
your library.
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Illness and the Art of Creative Self-Expression,
by John Graham-Pole,
forward by Patch Adams
Wake
the creative soul that lies hidden inside. Learn about the healing that
can come from the use of painting, drama, writing (prose and poetry),
creative imagery, music and laughter. This is an enjoyable and
informative book. Dr. Pole has a writing style and joyful heart that will
grab you. Includes serious lessons in the art of playful silliness :-}.
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Recovering from Depression: A Workbook for
Teens, by Mary Ellen Copeland
and Stuart Copans
Caught in-between childhood and adulthood, teens live in a special world.
Teens with chronic illness are even more at risk for
depression. This book can give them the helping hand they need to bring
them out of that valley of confusion and turmoil.
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Postpartum Survival Guide,
by Ann Dunnewold, Diane G. Sanford, 1994
This
is a special book for women dealing with a challenging time of life.
Mothers-to-be, I suggest you read this book while waiting for your child
to enter the world. Don’t wait until after the birth. You need to have this
information now.
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The Loneliness Workbook: A Guide to
Developing and Maintaining Lasting
Connections, by Mary Ellen Copeland, 2000
This
is an important book, especially for those of us further isolated by
chronic illness. Studies show that our connections to others are vital to
help us cope with the obstacles in life. This is an important tool for
anyone who has ever felt lonely.
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Healing the Trauma of Abuse: A Woman’s
Workbook, by Mary Ellen Copeland,
Maxine Harris, 2000
If
you are a woman who has survived abuse, this book may be what you need to
help gain control over the demons of the past. If you still feel
victimized, you CAN overcome it. This book gives you help.
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Alternative Treatments for Fibromyalgia and
Chronic Fatigue Syndrome, by Mari Skelly and Andrea Helm
This
book is a gem. There are patient stories as well as sections written
by different varieties of care providers, including an osteopath, an
acupuncturist, varieties of body workers and mind workers, and a lawyer.
This book also explores narcotics and marijuana use for chronic pain.
It is put together very well. I am very pleased to have a section in
it.
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The Depression Workbook: A Guide to Living
with Depression and Manic
Depression, by Mary Ellen Copeland, MA, 1992
Mary
Ellen Copeland's books so impressed me that I knew she would be a valuable
resource person for anyone involved in the life struggle of chronic
depression. These books are in workbook form, which makes it easy for the
reader to perform self-assessment. Wellness Recovery Action Plan by Mary
Ellen Copeland, MS, MA. P.O. Box 6237, Brattleboro, VT 05301 $10 + $2 S&H
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Beyond
Chaos: One Man’s Journey Alongside
His Chronically Ill Wife, by Gregg
Piburn, 1999
The Arthritis Foundation has done a favor for us all by
publishing this book. This is
one of the best books I have ever read about the main supporter of someone
with a chronic illness. In
this case, Gregg’s wife has fibromyalgia and chronic fatigue syndrome. They were young and athletic, with young children, facing the
severe challenges of a life far different than one they expected to
live. I recommend this highly,
not only for the supporter but for the person with illness, as we all
have a lot to learn from this honest and articulate author.
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Living
Without Depression and Manic
Depression, by Mary Ellen Copeland, MA, 1994
This book is in workbook format,
often very helpful to those of us with fibrofog. It teaches a variety of
mind work mentioned in my first book, such as breathing, progressive
relaxation, meditation, visualization, self-hypnosis and biofeedback, as
well as job stress management.
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The Relaxation and Stress Reduction
Workbook, by M. Davis, PhD, E.
Robins Eshelman, MSW, and M. McKay, PhD, 1995 |
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![Dr. Cat's Helping Handbook [dchhcover.jpg (20150 bytes)]](http://www.sover.net/~devstar/images/helpinghandbook.jpg) |
Dr. Cat’s Helping Handbook by Cat Saunders, PhD,
Heartwing Foundation, 2000
Dr. Cat has written a marvelous book with short
chapters that are easy and fun to read. Her writing style is friendly and
warm. She deals with such topics as "soul massage", handling
anger and
self respect. She includes personal rituals that may help you get in touch
with your inner being.
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The Enchanted World of Sleep, by Peretz Lavie, Dean of the Faculty of
Medicine at the Technion--Israel Institute of Technology in Haifa
If you want to understand the
mechanics behind sleep, dreams and biological clocks, read this one. Lack of restorative sleep is a major perpetuator of both fibromyalgia and
chronic myofascial pain. This is the best book I found that both explains
sleep and sleep disorders and then helps you identify the factors that are
affecting your quality of sleep.
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The Promise of Sleep,
by William C. Dement, MD, PhD, and Christopher
Vaughan
If you want to lean more
about sleep in great but enjoyable detail, this book is for you. It
is a BIG book, written by one of the greatest pioneers in the field of
sleep research. If you have periodic limb movements, myoclonus, or other
sleep problems, or need your sleep habits changed, you should at least
suggest that your library purchase this book.
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The Tao of Conversation: How to Talk About
Things that Really Matter, in
Ways that
Encourage New Ideas, Deepen Intimacy, and
Build Effective and
Creative Working
Relationships, by Michael D. Kahn, 199
Communication is our most important
skill. We can't get what we need without it. This book explains how to get
your point across in the most positive manner, without ruffling feathers.
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Thoughts & Feelings: Taking Control of Your
Moods and Your Life, by Martha Davis, PhD, Patrick Fanning,
Matthew McKay, PhD
Matthew McKay is not only a PhD
psychologist, he is my publisher. I'm very proud of the books he's
written. Thoughts and Feelings is an easy to understand book about
minimizing the effects stress has upon your life. Lack of self-esteem can
be a major perpetuator in fibromyalgia. These books taught me a great
deal.
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Self Esteem,
by Matthew McKay, PhD, and Patrick Fanning, 1997
Click here for the paperback.
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Job-Hunting Tips for the So-Called
Handicapped or People Who Have
Disabilities: A
Supplement to What Color Is Your Parachute?, by Richard
Nelson Bolles, 1992 |
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Accessible Gardening for People with Physical
Disabilities:
A Guide to Methods, Tools & Plants, by Janeen R. Adil |
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| Getting to Sleep : Simple, Effective Methods for Falling
and
Staying Asleep, Getting the Rest You Need, and Awakening, by Ellen Mohr
Catelano |
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Traveling....Like Everybody Else: A
Practical Guide for Disabled
Travelers, by Jacqueline and Susan Gersten.
Freedman, 1987
This book gives helpful hints for
those of us who would like to travel but have remained close to home due
to the logistics involved in traveling with a chronic pain condition.
You need a vacation.
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Mainstay:
For the Well Spouse of the Chronically Ill, by Maggie
Strong
For
the well spouse. This book validates and supports those spouses and
partners who support us, and covers some of their special needs.
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| Beyond Rage: Mastering Unavoidable Health Changes,
by Joann Lemaistre |
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| Making Changes: Family Voices on Living with
Disabilities, by Jan A.
Spiegle (Editor), Richard A. Van Den Pol, 1994 |
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| How to Run a Support Group,
by Bev
Spencer, National Foundation for FM, PO Box 3429, San Diego, CA 91263-1429 |
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| The Special Needs
Project, 3463 State
Street, #282 Santa Barbara, CA 93105, 800-333-6867. Send for catalogue of
GREAT and inexpensive books, such as: |
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Coping
with College: A Guide for Academic
Success, by Alice L. Hamachek
(section on learning disabilities)
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Beautiful Again: Restoring Your Image and
Enhancing Body Changes, by
Jan Willis |
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